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Once again I am asking for support and information from Barbelith.
My cousin has recently been diagnosed with Vulvodynia. It is a rare subset of fibromyalgia. Basically, it's a very intense nerve pain centred around her sex organs, making sex next to impossible much of the time.
She is taking a special physiotherapy for dealing with the physical pain, as well as seeing a therapist for the emotional damage.
As you can imagine, her condition is really messing up her life. Her boyfriend recently broke up with her (He actually had other issues himself as well, but it certainly was a big factor.) and she is entering a depression as she believes that no one will want her as a girlfriend because of her attacks (It's fairly constant, but more bearable some times than others)
She's 25 years old, in university, and dealing with this is really tough. I offer her as much comfort and support as I can.
I am one in a handful of people who she can talk to about it. Her immediate family refuses to see her as being a sexual person, so they downplay her condition in various ways: That she shouldn't have sex anyway so it shouldn't matter; That it's all in her head; That it's a "Phase".
She's net saavy and has sought out on-line suppoert groups both for Vulvodynia specifically and Fibromyalgia in general. She hasn't had much luck: she found a couple, but they weren't that great, she said.
That's where you come in, Dear 'Lithers: I want to know if anyone has any info on the disease (Other than what's easilly Googleable) and/or if anyone is aware of any support groups that may be helpful to her, condition-specific or otherwise.
Thanks
Cameron |
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